Browse recruiting and upcoming clinical trials for Marfan syndrome.
Patient-friendly, AI-assisted summaries based on official ClinicalTrials.gov ↗ records. Last updated: Oct 10, 2026
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ClinicalTrials.gov is the complete and most up-to-date source. Trials may be missing, and trial information may have changed since our last check. Always verify important information in the official registry.
Who can join AIAdults (18+) with complex aortic aneurysms (including thoracoabdominal, pararenal, juxtarenal, aortic-arch) or Marfan/Ehlers‑Danlos/Loeys‑Dietz syndromes.
What is being studied AITests custom, physician-modified, and t-Branch endografts for repairing complex aortic aneurysms.
Who can join AIWomen aged 16–55 with an aortic dissection during pregnancy, labor, or within 12 weeks postpartum (including Marfan, Loeys‑Dietz, or vascular Ehlers‑Danlos).
What is being studied AICollects past clinical data on pregnancy-related aortic dissection and maternal and neonatal outcomes.
Who can join AIPeople with rare diseases (e.g., Huntington disease, Marfan syndrome, hereditary angioedema, congenital heart disease), their family members, and healthy volunteers.
What is being studied AICollects and standardizes biological samples and clinical data across a network of rare-disease biobanks.
Who can join AIWomen 18–45 who are pregnant or ≤30 days postpartum with a listed rare vascular disease (e.g., Osler Rendu/HHT, Marfan-related, primary lymphedema, superficial or cerebro-spinal AVMs).
What is being studied AICollects pregnancy outcomes and obstetrical complications via phone questionnaire.
Who can join AIAdults (18+) with Marfan syndrome or with syndromic/non‑syndromic thoracic aortic aneurysms, and healthy controls.
What is being studied AIStudies skin fibroblast behavior and collagen/extracellular matrix pathways in people with thoracic aortic aneurysm and controls.
Who can join AIPeople with hereditary cardiovascular diseases (for example hypertrophic or dilated cardiomyopathy, Marfan syndrome, familial hypercholesterolemia, long QT syndrome, Brugada syndrome, and others).
What is being studied AICollects clinical details and performs whole genome sequencing of DNA from buccal swabs.
ClinicalTrials.gov returned these when we searched for this condition, but we could not confirm from the registry records that they are intended for people with it. Check each trial’s eligibility criteria, and ask the study team if you are unsure.