Alström Syndrome

Research Updates (10)Clinical Trials (3)

Browse recruiting and upcoming clinical trials for Alström syndrome.

Patient-friendly, AI-assisted summaries based on official ClinicalTrials.gov ↗ records. Last updated: Oct 10, 2026

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3 trials

Sex

Age

Countries

Recruiting

Real-World Effects of MC4R Agonist Therapy in BBS and Severe Genetic Obesity

NCT07674290

Who can join AIPeople with Bardet‑Biedl syndrome or Alström syndrome who are receiving an approved MC4R agonist (setmelanotide).

What is being studied AICollects real-world safety, weight, metabolic, cognitive, and quality-of-life data for MC4R agonist therapy.

Study typeTreatment (drug) · Phase 4

CountriesGermany

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Recruiting

COhort for Bardet-Bield Syndrome and Alström Syndrome for Translational Research Monocentric Interventional Study

NCT04461444

Who can join AIPeople (any sex) with Bardet-Biedl syndrome (BBS) or Alström syndrome (ALMS), age 4 months and older.

What is being studied AICollects clinical, biological and quality-of-life data; includes genetic testing via skin biopsy.

Study typeOther

CountriesFrance

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Recruiting

Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford

NCT01793168

Who can join AIPeople with rare or undiagnosed conditions, and unaffected carriers of rare or uncommon diseases.

What is being studied AICollects patients' contact, demographic, and health information for a centralized rare-disease registry.

Study typeRegistry

CountriesAustralia, United States

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